In spite of the
benefits, I have a one huge beef with
the holistic health world. People in
this field are extremely reluctant to ever admit that their approach doesn’t
work for everyone. I’ve got news for
them: Nothing works for everyone. Like many autism parents, we have tried several
holistic approaches to help our daughter.
It adds up to a hell of a lot of time, money and energy, but we feel
that we’ve got to try. With all the
approaches we have taken, I don’t think any have had any long term
effects. Some worked in the beginning
and then stopped having any effect. Many
just never worked from the start. With
a couple of exceptions, I don’t think we were purposefully cheated or scammed. These
treatments were effective for many people; they weren’t for us. No one has ever fully admitted that their
treatment, for whatever reason, just didn’t work or stopped being effective. A holistic practitioner’s response tends to
fall into 3 categories.
1)
Naomi’s condition actually gets worse. The practitioner’s response is almost always
“It has to get worse before it gets better.”
I have found this to be the most overused phrase in the holistic health
world. First of all, it doesn’t have to get worse before it gets
better. It sometimes gets worse before
it gets better, but I find this is relatively rare and very temporary. Never have we have seen Naomi’s condition
get worse, and then find significant improvement. At best she gets worse and then goes back to
where she was before we started the treatment.
That is the regular ups and downs of having autism and we have witnessed
them whether we are following a particular holistic health protocol or not. Getting worse is not always a good sign, and
I’m tired of it being responded to that way.
2)
Naomi’s condition shows no change. This
one is most commonly met with denial. “Oh no, she wasn’t using spontaneous speech
like that 2 weeks ago. “ “Um, yes she
was. She wasn’t using spontaneous speech
in this particular building 2 weeks ago, but now that she’s been here every day
she uses spontaneous speech because that’s what happens when she is comfortable
in the environment. “ I imagine that a
neurotypical kid may be similar. Shy and
quiet when he’s first in a new environment and more likely to speak up as he
gets more comfortable. It is not an
indicator of an effective treatment.
Another response I hear is “I can tell that he eye
contact is better.” This phrase sets off
my BULLSHIT detector more than any other. Naomi has always had good eye contact, (at
least on her terms). I first brought Naomi
to a speech pathologist when she was 13
months old. She told me “You don’t have
to worry about autism because her eye contact is very good.” Needless to say, that wasn’t the case. Now, when a practitioner tells me that she
knows I’m wrong about improvement because she’s seen her eye contact get
better, I know that practitioner is desperately grasping at straws for a reason
I didn’t waste my money. It just plain
didn’t work.
3)
The condition gets better. In this case they are more than happy to take
the credit and wear it proudly. I
suppose they should. After all, that’s
what we came for. Sometimes they deserve
it. Sometimes, I’m pretty sure it had
nothing to do with their treatment, it was just a fluke. There have even been a couple of cases where
I haven’t followed through with the advice, so I know the improvement had
nothing to do with the recommended course of action, but they take the credit
without asking about the follow through.
When we see results, when their particular modality ceases to help us,
or she improves and then regresses, we’re back to denial. It feels like the improvement is more about
their ego than it is about the person’s healing. Maybe this is why they are so
reluctant to admit it when things don’t work.
They feel the need to defend themselves and the modality. The common response is to put it back on the
parent. You haven’t done it long enough,
you haven’t been patient enough. It
needs more time, more money, more energy, more commitment. You’re focusing on the wrong things. You need to forgo other modalities, other
therapies, other health experts and double down on your commitment for this to
really work.
When I hear these things I am
mentally transported back to the time before Naomi’s diagnosis. Many people - professionals and lay people -
came up with flippant explanations for her lack of development. Some said that she wasn’t talking because of
my high strung nature (rings of the refrigerator mother theory.) Others claimed that she didn’t talk because she
just didn’t need to. I catered to her
every need so why should she? Some felt
that I should focus on her gains rather than her failings. After all, she had good eye contact right? In the end, my sense that something was wrong
turned out to be correct. Ironically,
when I tell people in the holistic health field about this they generally roll
their eyes and say “Why don’t they listen to the mothers? You know your child best.” Somehow the belief that I know my child best
doesn’t hold up for holistic health practitioners when I tell them Naomi is not
responding to a particular treatment they believe in. Suddenly, this mom just doesn’t know up from
down anymore.
So after this experience, why
didn’t I learn to trust my instincts when it came to treatments? I guess I wanted to believe that the holistic
practitioners really knew best, that their treatments would work, that I just
had to put in a little more time, a little more effort a little more sacrifice
and it would all be worth it. In the
end, my sense that these treatments just weren’t working turned out to be true.
I’ve been through enough now that
I know not to second guess myself. When
I think we’ve given something a fair shot, when my bullshit detector goes off,
when I get told she’s doing awesome, and
I know she’s doing terribly, I cut and run. I can’t prove that something
wouldn’t be beneficial in the long run, but there’s just not enough time, money
and energy to go that far with everything.
Sometimes a holistic treatment
just plain doesn’t work. Each of us has
to use our judgment and move forward.
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