So here is what I propose: How about autistic people and their families write the NIH and let them know what does not need to be studied? Make it clear what is already accepted as common knowledge and what is worthless to us. Maybe we can help them spend their money more usefully. Here is my list of topics in the Things We Already Know and/or Find a Waste of Research Dollars.
Autistic Kids Have Poorer Sleep Quality Than Their Peers Into Teens
Children with autism get frustrated more easily than their peers
Autistic adults less likely to live independently
Autistic kids, on average, have fewer friends than their peers
Parents of autistic children are more concerned about what will happen to their children when they die
Autistic children get invited to fewer birthday parties and social events
Parents of autistic children spend more time supervising their children than parents of typically developing children
Parents of autistic children have more difficulty finding childcare help that meet their children’s needs
Autistic children Have more communication difficulties
Autistic children more likely to be enrolled in special ed.
Parents of autistic children less likely to get a review of what happened over the school day from their children
Autism linked to ADD and ADHD
Children with autism More likely to have sensory processing disorder
1 out of 3 Parents of children have fantasized about physically or emotionally harming a member of the IEP team
Parents of children with autism report losing friends for reasons related to their child’s diagnosis.
Parents of children with autism more likely to be spoken down to by healthcare and education professionals
Autism Linked to Anxiety
Autism Linked to OCD
Autism Linked to increased incidence of seizures
Families of children with autism spend more money on traditional therapies
Families of children with autism more likely to spend money on alternative therapies
Parents of children with autism have more knowledge on the topic that the majority of people with Master’s Degrees in the same discipline
Parents of children with autism have more struggles with Insurance Companies.
1 in 3 parents of children with autism report being blown off when they first expressed concern over their child’s development
Parents of children with autism spend more time fighting the education and healthcare services for their children
Regression can occur multiple times over the course of development in a child with autism
Parents report anger and frustration over frivolous autism study topics
Parents of children with autism have higher levels of stress hormones.
Autistic people more likely to engage in self-stimulatory Behavior.