As I read way too many blogs on the internet these days, I
see a recurring phrase among autism moms.
It goes something like this “I don’t care, what caused it. Now that he/she has autism, it’s my job to
help any way I can.” I understand and
respect that perspective, but there’s a part of me that feels a little
defensive since I really do care about the causes of autism.
If Naomi had slow, steady progress with her therapies and
biomed interventions, I would probably be among the ‘I don’t care’ ranks. After all, what does it matter if things are
improving and you can’t go back in time?
However, we haven’t seen slow, steady progress. Our path has been full of ups and downs. Progress – regress- progress- regress – progress
-regress. (If I hear ‘it has to get
worse before it gets better one more time, I’m going to punch someone!) I’ve
frequently been told, when starting a new therapy or supplement. “Keep everything else the same so you know if
it’s working.” This assumes, if we keep
everything the same, Naomi’s behavior, awareness and sensory experience will
stay the same. Well, it doesn’t. So often, Steven and I look at each other and
said “Has anything changed in the past week?
Are you giving her the same supplements, going the same places, doing
the same activities?” The answer is usually “No. Nothing has really changed,”
and “Yes, our routines have remained the same. ” Most of the changes we see don’t have an
obvious cause. Of course, nothing is
ever exactly the same. There are some
things that are out of our control. We
can’t keep the seasons, the weather, or several other extraneous factors the
same. Nevertheless, there usually isn’t
a change that we can point to. As far as
we can tell, there’s nothing to point to.
So, if we knew the cause of her autism, maybe I’d have a
better idea what causes this progress- regress pattern. We can’t possibly live in the modern world
and avoid every last thing that may be unhealthy, but if I knew what triggered
her, maybe I’d know how to prioritize and what to do to help her make
progress. The ‘try and see’ approach
takes an extraordinary amount of time, energy and money and it’s really not
working for us. So maybe, just maybe, if
we knew what the cause was, we’d our path forward would be clearer.
That’s why I care what caused it.
Makes sense to me. Personally I think there are multiple causes. Some kids really improve with certain treatments and to me that says that maybe what they have is way different from what my kiddos have (esp. the younger who sounds so much like Naomi!) I also think there would be a greater likelihood of curing them if they knew what caused it. I'm with you, sister!
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